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Skip search results from other journals and go to results- 3 JMIR Research Protocols
- 1 Asian/Pacific Island Nursing Journal
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The use of telemedicine has been especially important in patients with chronic diseases, such as systemic lupus erythematosus (SLE), who are at a high risk of severe COVID-19 and may benefit from less public exposure [3,4]. Missed appointments in general are associated with an increased risk of mortality and adverse outcomes [5-7]. Telemedicine has the potential benefit of improving no-shows by making clinic visits more accessible.
Interact J Med Res 2024;13:e49065
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[User 67]
“I had to cut my hair because of lupus (). I’ve been growing it for 7 and 1/2 years (). My hair started thinning out at the top because of the lupus (). So I knew soon I would have to cut it...I just found out I had lupus 4 months ago (). But at the end of the day (), my health is more important than my hair and the only way I could get it to grow back right is if I cut it (). This really broke my heart () but I’m still handsome [17] ()”.
JMIR Infodemiology 2024;4:e51211
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Exploring the Perspectives of Patients Living With Lupus: Retrospective Social Listening Study
Lupus-related keywords, defined and revised by human domain experts, were searched in Social Gist, a third-party search engine providing access to social media sites through an application programming interface search engine, to detect websites hosting relevant lupus-specific content. The following keywords were used for the search: “lupus,” “lupus” AND “systemic” AND “cutaneous” AND “subacute” AND “erythematosus” AND “autoimmune” AND “disease,” “SLE,” and “CLE.”
JMIR Form Res 2024;8:e52768
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Inclusion criteria
Age ≥18 years
Diagnosis of systemic lupus erythematosus (SLE; defined by the American College of Rheumatology or Systemic Lupus International Collaborating Clinics [SLICC] criteria)
Musculoskeletal pain ≥4 on a nonanchored, 10-cm visual analog scale (VAS)
British Isles Lupus Assessment Group (BILAG) C on the musculoskeletal domain of the BILAG 2004
If on corticosteroids, stable dose of ≤10 mg/day (prednisone or equivalent) for at least 28 days before baseline
If on background immunosuppressive
JMIR Res Protoc 2023;12:e48387
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DHI: digital health intervention; LFA: Lupus Foundation of America; LRA: Lupus Research Alliance; PLM: Patients Like Me; RAY: Research Accelerated by You; SLE: systemic lupus erythematosus; OASH: Office of Women’s Health.
Our medical delivery system in the United States is inefficient and fragmented. Coupled with a multitude of health care access barriers, SLE represents a significant challenge for patients.
J Med Internet Res 2023;25:e44660
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In patients with systemic lupus erythematosus (SLE), fatigue is the most common and most prevalent symptom. Fatigue is present even with mild and inactive cases of SLE disease [3]. Although numerous studies and reviews highlighted SLE-related fatigue as the most burdensome and often the most reported symptom in SLE, it remains poorly assessed and managed across cultures.
Asian Pac Isl Nurs J 2022;6(1):e39132
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Systemic lupus erythematosus is a complex, autoimmune disease; information from multiple sources should be considered in disease management. In Japan, limited epidemiological information on systemic lupus erythematosus is available [10]. Systemic lupus erythematosus has been reported to impair quality of life [11], and patients with systemic lupus erythematosus have suggested that the most important topics to consider in disease management are strengthening well-being and minimizing disease burden [12].
JMIR Public Health Surveill 2021;7(6):e29238
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Lupus is a chronic disease characterized by an autoimmune response that can range in its frequency and affect any part of the body (skin, joints, and organs). It is estimated that at least 5 million Americans have lupus, with more than 16,000 new cases of lupus being reported annually in the United States [1]. The condition strikes mostly women of childbearing age, while women of color are 2-3 times more likely to develop lupus than Caucasian women.
JMIR Res Protoc 2021;10(5):e15716
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Lupus is a chronic autoimmune disease that can affect any part of the body (skin, joints, or vital organs) [1,2]. Estimates from recent population-based studies in the United States report the prevalence of systemic lupus erythematosus (SLE), the most common form of lupus, to be between 60 and 80 per 100,000, although this prevalence varies greatly by age, gender, race, and ethnicity.
JMIR Res Protoc 2020;9(8):e15623
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Individualized Diet and Lifestyle Modifications Reverse Symptoms of Systemic Lupus Erythematosus
lupusIndividualized Diet and Lifestyle Modifications Reverse Symptoms of Systemic Lupus Erythematosus
iproc 2018;4(2):e11804
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